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Neurofibromatosis Type 1

Submitted 21-May-17 by

Sandy Combe, Practitioner, Scotland

Keywords: 17

The following is taken from a written testimonial of the mother of an 8 year old boy - who is now an adult and is taller than me!

"Jonathan is 8 years old and has a genetic condition called Neurofibromatosis Type 1. This means that he is small for his age, has poor fine and gross motor skills, co-ordination problems, a lack of strength compared to his peers (e.g. he does not walk as far or fast, running is hard, he cannot cycle). He also has Neurofibromas (tumours)which appear as lumps on his body. His future is unpredictable physically. He also has a level of learning, social and behavioural difficulties associated with NF1, and these are similar to those experienced by a child with Aspergers Syndrome. School has not been easy for Jonathan and he gets very tired. He has a poor appetite, has always eaten a very limited range of foods, and needed constant reminders to drink enough. Jonathan has been having BodyTalk sessions for about a year now. He has always enjoyed these sessions and found them relaxing, even falling asleep at times. Over the year he has come on well in many aspects of life. Whilst it is not possible to know what is directly as a result of BodyTalk, I feel it has contributed. Many of the ara of imbalance identified in the sessions makes sense in terms of the NF and of Jonathan as an individual. Improvements include: - He has grown a lot taller, and his legs in particular have grown (having short legs is a feature of NF1). - His co-ordination has improved e.g. his drawing and writing are much better, and he has become very keen of using tools for woodwork. Whilst he cannot still ride a bike, he has a scooter and has become much more confident in using this (NOTE: I saw this client a year later, cycling on the street, so another improvement). - He is stronger, e.g. can walk further and is much less tired after school. - His appetite is better than it was, and he is eating more of a range of food. - In general he is happier in himself and more able to occupy himself at home. Whilst he still struggles socially, he is more resilient and less easily upset by other children. - Whist he still has Neurofibromatosis - there is no cure - this has not got worse.

NOTE: This testimonial was written in 2007 and the 'boy' is now a fine young man who is taller than me (5' 7")

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